Family Stories and Case Studies

Family Stories and Case Studies

Being the parent or carer of a disabled child can be rewarding, challenging, exhausting, difficult, overwhelming, complicated all in one day. Here some parents - Sonia, Christine, Victoria, Carol and Linda - tell us how things are for them and their families.

We also hear from Taylor who is 14 and has cerebral palsy quadriplegia about the challenges of getting out and about and finding places to socialise.

Tom's Story...

Tom's Story...

Some people just seem to know!

Tom, father to William says there are certain people who will go that extra mile to help and support families who have children with disabilities and additional needs. 

Tom and his wife Dawn have 3 boys and William the youngest has severe learning difficulties and complex health problems including epilepsey and a gastrostomy. He goes to Wren Spinney school in Kettering.

Tom thinks Aiming High did an exceptional job in raising awareness about how difficult it is for families to find the right support and information to help them care for their children.

“not one size fits all, families and individuals need a support network that helps navigate the service route that they have to go through, its not difficult to change a model if you listen to and appreciate the individual circumstances” Tom feels that some families and young people need an advocate service not to “get more” but to make the process smoother and more equal.

“Participation of parents in service change and implementation is important and it works but it needs to be balanced so a clear concise view is presented. Getting parents on side is not difficult- talk to them!”

Tom's Story..

Tom worries about the future for Will and wants services to go that extra mile to take away that anxiety that parents feel when looking towards adulthood for their young people.

“Will is 15 in a 4 year olds world, he’s gorgeous! Services can improve their involvement in the provision for Will and others its easy, listen to families, listen to young people and this in time will help improve time management, management of case loads and eventually save money!

Tom's Story.. Northants Parent Forum Group Family Stories and Case Studies

Sonia's Story...

Sonia's Story...

I got involved because I wanted to 'shake up' services ..Read Sonia's Story here

Christine's Story...

Christine's Story...

Being involved in parent participation forums makes me fell more confident that parents' views are listened to ..Read Christine's Story here

Victoria's Story...

Victoria's Story...

Don’t be scared to ask for help like I was ..Read Victoria's Story here

Tom's Story...

Tom's Story...

Some people just seem to know! ..Read Tom's Story here

Carol's Story

Carol's Story

Find out all you can, talk to other parents ..Read Carol's Story here

Sheila's Story...

Sheila's Story...

We remain positive and hopeful. Perhaps someday soon there will be more support ..Read Sheila's Story here

Olivia's Story...

Olivia's Story...

I am just a parent like you ..Read Olivia's Story here

Family Stories and Case Studies

Achieving Positive Change through Effective Participation and Collaboration

If you would like to tell your family story here or would be happy for your story to be used please contact us.

Tom's Story.. Northants Parent Forum Group Family Stories and Case Studies

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