Family Stories and Case Studies

Family Stories and Case Studies

Being the parent or carer of a disabled child can be rewarding, challenging, exhausting, difficult, overwhelming, complicated all in one day. Here some parents - Sonia, Christine, Victoria, Carol and Linda - tell us how things are for them and their families.

We also hear from Taylor who is 14 and has cerebral palsy quadriplegia about the challenges of getting out and about and finding places to socialise.

Sheila's Story...

Sheila's Story...

We remain positive and hopeful. Perhaps someday soon there will be more support

Married with 3 Boys, Harry 23 yrs, Harvey 17 yrs, and Anthony 9 yrs old.

Anthony from the moment he appeared into our world showed sleeping issues. Which to this day has not improved. He was and is an extremely hyperactive child. It was only when he entered Reception/foundation stage that the SENCO teacher spotted something more. She suggested he might be Aspergers, this led on to having an assessment and him being diagnosed with ADHD.

Anthony is a very bright, bubbly, excessively talkative boy; unfortunately, his condition can take this away from him, particularly when met with strangers, as naturally they have no idea of his condition or character and tend to view him as a very naughty child. He is very imaginative (I think the next JK Rowling), confident, but this can become clouded with his impulses and need to be centre of attention.

With the use of 123 magic (effective disciplinary method, which is suitable for all children) and clear boundaries his behaviour is reasonably manageable. Although if there is a small change in his routine this generally has a negative impact on him and his behaviour can become quite challenging regardless of what is said or done.

We have resisted treatment with medication in fear of all the numerous side effects. We hope that with some professional help from CAMH’s we may be able to avoid this avenue altogether and seek a more holistic approach.

Sheila's Story..

We changed his school, which had an average of 30 pupils, to a much smaller setting 11 per class, in the hope that he will obtain the attention he desperately requires.

We remain positive and hopeful. Perhaps someday soon there will be more support for children like Anthony and a greater understanding of their difficulties/condition amongst teaching staff and adults in the wider community.

Sheila's Story.. Northants Parent Forum Group Family Stories and Case Studies

Sonia's Story...

Sonia's Story...

I got involved because I wanted to 'shake up' services ..Read Sonia's Story here

Christine's Story...

Christine's Story...

Being involved in parent participation forums makes me fell more confident that parents' views are listened to ..Read Christine's Story here

Victoria's Story...

Victoria's Story...

Don’t be scared to ask for help like I was ..Read Victoria's Story here

Tom's Story...

Tom's Story...

Some people just seem to know! ..Read Tom's Story here

Carol's Story

Carol's Story

Find out all you can, talk to other parents ..Read Carol's Story here

Sheila's Story...

Sheila's Story...

We remain positive and hopeful. Perhaps someday soon there will be more support ..Read Sheila's Story here

Olivia's Story...

Olivia's Story...

I am just a parent like you ..Read Olivia's Story here

Family Stories and Case Studies

Achieving Positive Change through Effective Participation and Collaboration

If you would like to tell your family story here or would be happy for your story to be used please contact us.

Sheila's Story.. Northants Parent Forum Group Family Stories and Case Studies

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