Family Stories and Case Studies

Family Stories and Case Studies

Being the parent or carer of a disabled child can be rewarding, challenging, exhausting, difficult, overwhelming, complicated all in one day. Here some parents - Sonia, Christine, Victoria, Carol and Linda - tell us how things are for them and their families.

We also hear from Taylor who is 14 and has cerebral palsy quadriplegia about the challenges of getting out and about and finding places to socialise.

Olivia's Story...

Olivia's Story...

I am just a parent like you

My name is Olivia and I am a parent just like you. My six year old daughter Emily has a rare genetic syndrome called Cornellia De Lange. It has affected her growth, weight, speech, hearing and she is developmentally delayed and has learning difficulties.She attended mainstream school at first but is now in a Primary School with a DSP unit. Emily has recently benefitted from the support of The Core Offer for the Disabled Children's service for which we are very appreciative.

Olivia's Story..

I know how it feels to have to advocate for your child to teachers and health professionals who know little about rare genetic syndromes like my Emily’s. This is why I have joined the parent’s forum to work with professionals to give them an insight no how it feels and what we would like for our children.

I am hopeful that working together parents and professionals we can achieve a positive change to attitudes and outcomes for our children.

Best Wishes Olivia

Olivia's Story.. Northants Parent Forum Group Family Stories and Case Studies

Sonia's Story...

Sonia's Story...

I got involved because I wanted to 'shake up' services ..Read Sonia's Story here

Christine's Story...

Christine's Story...

Being involved in parent participation forums makes me fell more confident that parents' views are listened to ..Read Christine's Story here

Victoria's Story...

Victoria's Story...

Don’t be scared to ask for help like I was ..Read Victoria's Story here

Tom's Story...

Tom's Story...

Some people just seem to know! ..Read Tom's Story here

Carol's Story

Carol's Story

Find out all you can, talk to other parents ..Read Carol's Story here

Sheila's Story...

Sheila's Story...

We remain positive and hopeful. Perhaps someday soon there will be more support ..Read Sheila's Story here

Olivia's Story...

Olivia's Story...

I am just a parent like you ..Read Olivia's Story here

Family Stories and Case Studies

Achieving Positive Change through Effective Participation and Collaboration

If you would like to tell your family story here or would be happy for your story to be used please contact us.

Olivia's Story.. Northants Parent Forum Group Family Stories and Case Studies

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